This website has been funded and developed by Abbvie and is intended for UK audiences only.
The importance of community and learning from others
The time between diagnosis and treatment can be an anxious time for many, particularly if you are on ‘active monitoring’ or ‘watch and wait’; family and friends may ask questions about potential treatment, and despite regular check-ups, it may feel difficult waiting for the next tests and any subsequent test results.
However, you are not alone. There are many people around the UK who will be in the same position or will have experienced what you or your loved ones are going through.
Connecting with the CLL community and learning from others, who have shared or similar experiences, may offer you comfort and solace. It is also important to communicate your emotions and feelings with your healthcare team during appointments. They may be able to signpost you to local support groups or charities that can offer you and your loved ones the support you need.
Watch this video to hear from other people living with CLL as they share their experiences of managing diagnosis and adjusting to life with CLL.
Coping with change
Following a diagnosis, it is important to remember that even though some elements of life may change, many things don’t.
Whilst there may be feelings of uncertainty around a diagnosis, keeping routines and daily life as regular as possible can be an important part of managing your condition.
Hear from Nick, Norah, John and Liz who provide insights into their day-to-day lives as they navigate living with CLL.
Support, every step of the way
Fancy a walk? Movement and gentle exercise can be very beneficial and incorporating it into your routine can have a positive impact on your mental and physical health. Why not listen to a podcast on living with CLL, or caring for someone who is, while you're stretching your legs.